Before taking part in health research, there are some key questions you may wish to ask to make sure you are informed and prepared.
Here are some examples of what you might like to ask. The answers may be different dependent on what kind of study you are taking part in.
About your study visit
- How long will each visit take?
- Are there any screening or eligibility checks before joining?
- What will happen at each visit (e.g. will I need to have tests or blood samples, is this a vaccination study)?
- Are there any apps, equipment, or passwords I will need to use?
- Will there be equipment or kits to take home- how heavy or big are the kits?
- Do any tests take a particularly long time?
- Can a family member come with me to the study visits?
About the treatment and results
- What exactly does the trial involve (e.g. vaccines, blood tests, check-ups)?
- Have there been similar studies/treatments? If so, what were the results?
- Will I know if I am receiving the study treatment or placebo?
- What are the potential benefits and risks, including side effects?
- How and when will I hear about the results?
- What if the trial treatment doesn’t work better than what’s already available?
Practical considerations
- Will taking part affect my travel or health insurance?
- How will my transport and travel costs be managed?
- Will participation affect my daily life or work?
- Are there peer support groups for participants?
Documents and information
- Can we go through the information sheet together in an informal first meeting?
- How is my personal information used and protected?
- Can study information be provided in other formats or languages?
